A Heartfelt Thank You from Us to All SEN Mummas

One of our amazing members, Toni, recently shared a deeply moving message we couldn’t wait to pass along. Her words are raw and real, capturing the struggles many of us face daily. Here’s what she had to say:

The Raw Reality

“From one SEN mumma to all others, I want it known that this wonderful site is my getaway from drama, stresses, dirty nappies, screeching, appointments, hospital trips, operations, tantrums, dancing, full volume on the T.V, eating off the floor, s**t-smeared walls, broken windows, broken furniture, flooded floors, handprint walls, bruised bodies, more appointments, more hospital trips, people’s remarks, staring, living indoors, headaches, and lack of sleep… I could go on and on and on.”

Her words are so real and so raw. They capture the struggles that many of us face every single day. It’s a reality many parents of children with special educational needs know all too well. But despite all of these challenges, the Chaoss community has become a safe haven—a place to escape, connect, and find comfort.

Facing the Heavy Burden

Toni also shared, “My son was diagnosed with severe autism, I mean the most severe—it’s right up there—and now his 3-year-old brother is expected to have the same non-verbal/speaking condition.”

These are the heavy realities many parents in our community know all too well. Toni reflects on the constant worry we all carry: “Will they ever live alone? Will they have their own freedom, houses, partners, and live a ‘normal’ life?”

And then there’s the fear that grips us all—what would happen if something were to happen to us as parents? What would become of them?

A Place of Comfort Amidst Struggles

Yet, even with all these overwhelming thoughts, Toni—and many others—find comfort in this community. It’s a reminder that there is still joy and connection to be found, even in the hardest times. She shared, “Even if it’s just 5 minutes here and there, this space reminds me that I’m still me.”

Toni also mentioned, “I gave up my business and am now totally isolated from the outside to care for my children.” The sacrifices are huge, and the dedication it takes to care for children with additional needs is immense. But her closing words remind us of the real impact we make as a community: “Every win pays for equipment they need and debts that have occurred looking after their needs… which is a bloody lot.”

The True Value of Our Community

Moments like this show us the true value of what our community offers. Every win, every connection, and every small moment of joy helps ease the burdens we carry as parents and carers.

“Thank you, Shana [our founder], for bringing us SEN mummas together to see we are NOT alone,” Toni adds.

To all the mums, dads, and carers out there who are part of this journey, we want you to know how much we appreciate you. Your strength, resilience, and courage inspire us every day. Thank you for being part of this community. We’re here for you, every step of the way.

We’d love to hear about your Chaoss journey! If you’d like to share your story with us, please reach out by emailing contact@chaotic.co.uk.

 

A Heartfelt Thank You from Us to All SEN Mummas

At the heart of everything we do is the incredible community we’ve built together. Every day, we are reminded of the difference we make in each other’s lives. Today, we want to share a message that truly touched us—a beautiful reminder of why we do what we do and the profound impact this space has on so many.

 

A Powerful Message from Our Community

One of our wonderful members, Toni, shared a deeply moving message that we couldn’t wait to pass along. Her words are raw, real, and resonate with so many of us in the SEN community. Here’s what she had to say:

“From one SEN mumma to all others, I want it known that this wonderful site is my getaway from drama, stresses, dirty nappies, screeching, appointments, hospital trips, operations, tantrums, dancing, full volume on the T.V., eating off the floor, s**t-smeared walls, broken windows, broken furniture, flooded floors, handprint walls, bruised bodies, more appointments, more hospital trips, people’s remarks, staring, living indoors, headaches, and lack of sleep… I could go on and on and on.”

 

These words speak to the everyday struggles that so many parents of children with special educational needs (SEN) face. It’s a reality that many in our community know all too well. Yet, amidst the challenges, this site has become a space of comfort and connection—offering a moment of escape and relief.

 

The Heavy Realities of Parenting with SEN

Toni continues to share her personal journey:

 

“My son was diagnosed with severe autism, I mean the most severe—it’s right up there—and now his 3-year-old brother is expected to have the same non-verbal/speaking condition.”

These are the types of heavy realities that weigh on the minds of many parents in our community. Toni reflects on the constant worry many of us share—questions like: “Will they ever live alone? Will they have their own freedom, houses, partners, and live a ‘normal’ life?”

The fear of what might happen if something were to happen to us as parents is also a constant concern. But even in the face of these overwhelming thoughts, Toni and many others find solace and support in this space.

 

A Place of Comfort, Even in the Toughest Times

As Toni shares:

“Even if it’s just 5 minutes here and there, this space reminds me that I’m still me.”

Toni gave up her business to care for her children, leaving her isolated from the outside world. The sacrifices she makes are immense, and yet, this community offers her moments of joy and connection. Every win, every moment of support, helps ease the burdens of raising children with additional needs.

 

Gratitude and Community Strength

Toni’s closing words remind us of the real impact we make:

 

“Every win pays for equipment they need and debts that have occurred looking after their needs… which is a bloody lot.”

These moments—whether big or small—serve as a reminder of why this space is so important. Every connection, every act of kindness, every shared experience helps make the journey a little easier.

 

Thank You for Being Part of This Journey

Toni also shared her gratitude towards Shana, our founder, and we want to echo that sentiment:

 

“Thank you, Shana [our founder], for bringing us SEN mummas together to show we are NOT alone.”

To all the mums, dads, and carers out there—thank you for being part of this community. Your strength, resilience, and courage inspire us every day. We see you. We are with you, every step of the way.

 

Join Us

We’d love to hear your story. If you’re a parent or carer on this journey, share your experiences with us. Together, we can continue to support each other and make this community an even stronger source of comfort.

 

Final Thoughts:

This blog serves as a reminder that no one is alone in this journey. Each connection, each shared experience, makes the path a little brighter for everyone. Thank you for being part of this amazing community. We’re here with you, every step of the way.